Tuesday, April 28, 2009

Masto Monday

Well the day started out like any other. Then by 1pm I was starting to itch and not feel good. I thought, well there is enough pollen in the air to down an elephant so I took an extra benadryl and just hung at home.

Well my son needed material for his school sewing project so I picked the kids up from Track practice and we went directly to the store. My daughter began immediately harping about how hungry she was. She is always hungry!

So we stopped at Cold Stone Creamery for some ice cream before our shopping. MMMMMM it was so good, a great way to start the week, or so I thought.

Then half way through shopping, it hit.... my mast cells way out of control. My face was red, my temper flared, I felt sick to my stomach, and I felt like dying. Needless to say I knew I needed to get home. My son and I stayed focused on the task at hand, finally picking out material and getting into the car.

He had no idea I was feeling bad, by now its 7pm we had no dinner yet, and I knew I had to get home. The kids fought the whole way home, causing me to blow up once we arrived. Not a pretty picture. Red faced and feeling crappy I started the grill to cook up the chicken and the hubby shows up. I put on my game face and finish dinner, promptly sit down in front of the computer and start feeling my throat close.

Now mind you this is when doctors will tell masto patients to use their epi-pens, however it was my esophagus not my airway, and I downed 50mg of benadryl and 20 of claritin 50 of doxepin and an aspirin and sat to wait it out. My hubby looks over and says "are you okay"?

No I'm not, its a masto monday for me!! About 2 hours later, I crawl into bed and blissfully fall asleep. For the first time in weeks I slept like a baby, a nice way to end a terrible masto monday!

Sunday, April 26, 2009

Masto Meeting

Well our masto support group meeting went off without a hitch!!! Dr. Butterfield from the Mayo clinic came and spoke with us regarding how to read our bone marrow biopsies and how to monitor our labs. We also decided to do a Minnesota walk a thon to raise money for research!!

It was a great meeting and I was so happy that 15 people showed up!!! We had 5 new people who had never been to a meeting before!!

On the home front allergy season is upon me with a vengence!! Swollen eyes, itchy skin (more than usual) and the swelling never seems to quite go away!!! I hope everyone out there in masto land is doing well.

Wednesday, April 8, 2009

Too long a break

Well it seems like forever since I posted. My masto has been fairly under control with the itching, and stomach issues being the worse of it.

Family has been great with my husband giving me the best gift ever... time for myself and the money and encouragement to branch out and get fit and healthy.

Yes I started working out!! Very scary I know with the masto, but its going fairly well. There are times when I know I have to relax and take it easy, but overall I am really pleased with my progress so far!!

The teenagers continue to give me heart ache. My son is all about girls and being cool, my daughter is learning about make up and cool clothes... ahhh the trials and tribulations of being a mom.

If you don't follow masto mamas blog please check it out and put Gavin on your prayer list. mastomama.blogspot.com

Have a great day!